43 Comments
User's avatar
Michele Cernese's avatar

Love love love the 3 poems.

I feel the struggles in each one of them.

I see my Braydens face in each of them too❤️❤️❤️

Chris B. Writes's avatar

Awwww thanks Michele!

Florence Acosta's avatar

Your words carry both the weight of caregiving and the love that keeps carrying you forward. Thank you for sharing such an honest glimpse into a journey that asks so much, yet still finds reasons to hope.

Chris B. Writes's avatar

Thank you so much Florence!

SandiLindgren's avatar

Beautiful. ❣️Makes me pause, brought me back to my own self. Thank you.

Chris B. Writes's avatar

Appreciate your kind words Sandi!

Dr. Hui  | The Prevention Edge's avatar

Beautiful poems! Thank you for sharing.

Chris B. Writes's avatar

Thank you so much Dr. Hui

Dr. Hui  | The Prevention Edge's avatar

You’re most welcome. You can call me Hui.

More Than Poetry's avatar

Thank you💛 The Etch-a-sketch is a perfect illustration. ‘Outside’ people don’t acknowledge that part of the journey often enough.

Nikki Meyler Miller's avatar

Chris, you are truly a masterful poet. The first resonates with me as a caregiver for one with dementia. I'm sure it will resonate with many caregivers. I'd like to print and share it with caregivers, with your name and Substack address attached, and your permission,

Chris B. Writes's avatar

Hi Nikki, That’s so kind of you! Please do! My Substack is https://chrisbwrites.substack.com

Feel free to DM me and we can talk!

Gary L Taylor's avatar

Incredible work, Chris. Heartfelt and really captures parts of your life and story. I think the powering them is that they not only let us look into your story but they take us there and let us feel them, too.

Chris B. Writes's avatar

You are too kind Gary! I definitely try to tell the emotional truth behind it all, whether it’s the joy, the hardship, or everything in between.

Sincerely Seb's avatar

This is masterful work.

Rayya Ghul's avatar

These are wonderful poems that capture the realities of caregiving for a family member so well.

Chris B. Writes's avatar

Hi Rayya, Thank you for reading!

Karen Monroe's avatar

It only takes a few lines to know you are experiencing someone’s life and that of another. Your story emerges in heartfelt moments through out every poem. And a tear drop falls and then another. One for the agony of feeling the pain of being there and the next for knowing the best of two people reside in those lines. Thanks for sharing and congratulations on your publication

Chris B. Writes's avatar

Hi Karen, Thank you so much for both your kind words and your empathy. It means more than you know.

Stories from Cambodia's avatar

Moving, powerful and beautifully written..

Linda Olson's avatar

Amazing poetry! And to know pieces of your story makes the poetry even more powerful. Staying in the water…makes sense to me. We can carry more in the water.

Kurt Schliemann's avatar

Some days it reaches my chest,

and breathing becomes

a deliberate act,

counted,

negotiated.

You carry so much. And share so much. Love what you're putting out.

Chris B. Writes's avatar

Thank you so much Kurt!

Patrick J. Biancur's avatar

The Etch A Sketch image stayed with me, especially the shift from “not the life I mapped” to “but a life.” There is so much grief in watching the old lines disappear, but also a quiet kind of love in continuing to turn the knobs together.

Chris B. Writes's avatar

Hi Patrick, Appreciate your kind words. I definitely felt it too when writing, that pull between the past and the blank slate before us.

Jolene Bond's avatar

This is my favorite part: "Strength is knowing how to wade

without disappearing.

How to keep your head up

without hardening your heart.

How to remain visible

while carrying someone else’s weight." I can feel that too.

Chris B. Writes's avatar

Thank you for seeing that, Jolene.

Dr. Kala H Kos's avatar

Dearest Chris…your words are so heartfelt, so true, so real, so personal, so brave, so loving, and at the same time showing the fatigue, the vulenrability, the different future you had envisioned. So different than what is, but so complete in your knowing that “love is the whole show.”

These lines below pulled at my heart, because I was there, And it felt like no one else could know what “there” was like: But you knew/know.

Your poetry is not pompous or vague or mysterious. It is down-to-earth real and yet still poetic.

I hope that you have read my post: “The Night Archangel Michael Appeared” because I think you will see how very much both of our hearts have resonated and our souls have advanced through the giving of care to a beloved.

I didn’t wade in bravely.

I stepped in because someone I love

was already surrounded,

because standing on shore

felt like a luxury I couldn’t afford.

Chris B. Writes's avatar

Hi Dr. Kala, I truly appreciate your empathy, your compassion, and your thoughtful / heartfelt commentary. The lines you pointed out are definitely the heart of not just this poem but the past 12 years of caring for Bray Bray. I say all the time: Don’t mistake strength for obligation. We care for our loved ones not because we are strong, but because our love for them is unbending.

Dr. Kala H Kos's avatar

Truer words were never spoken, Chris. What amazes me is how you can balance your life with all of this and still show up to support people here. There are days when just keeping up with Substack feels unsustainable.

Mind you, I am 74, and I have just moved to a new country without knowing the language, etc etc. So I give myself some slack.

But watching all you do and yet you keep writing your poetry, to me that is inspiring!

Too bad Cretans don’t play pickleball! That might be what

I need! Ha ha ha…🤣🤩🤗❤️